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- Cancer claims the lives of more children each year than AIDS, asthma, cystic fibrosis and diabetes combined. It is the leading cause of death by disease in children and adolescents. *

- Each year in the United States, approximately 12,400 children and adolescents younger than 20 years of age are diagnosed with cancer. Approximately 2,300 children and adolescents die of cancer each year. *

- One out of every 300 males and one out of every 333 females in America will develop cancer before their 20th birthday.

- Childhood cancer does not discriminate, sparing no ethnic group, socio-economic class or geographic region. *

- About one in 500 young adults is a childhood cancer survivor. Nearly 2/3 of the survivors later experience significant and chronic medical problems or develop secondary cancers as adults that result from the treatment of their original cancer.

- In the past 20+ years ONLY ONE new cancer drug has been approved for pediatric cancer.

- The causes of most pediatric cancers remain a mystery and cannot be prevented.

- The average childhood cancer victim loses 71 life years; a significant loss of productivity to society.**

- Researchers estimate that 51% of moms and 40% of dads who have a child with cancer meet the criteria for “Acute Stress Disorder” within two weeks of the cancer diagnoses. ***


- Pediatric cancer Genome Project
- Kids v cancer - facts
- Childhood cancer Facts - The Truth 365
- Childhood cancer facts and statistics - PAC2
- A snapshot of Pediatric cancers - NCI
- Childhood cancer statistics - CureSearch
- Childhood cancer facts - Alexs lemonade stand foundation
- 2014 Childhood cancer statistics - 10 key facts  ACS

Sources:
Ries LAG, Smith MA, Gurney JG, Linet M, Tamra T, Young JL, Bunin GR (eds). Cancer Incidence and Survival among Children and Adolescents: United States SEER Program 1975-1995, National Cancer Institute, SEER Program. NIH Pub. No. 99-4649. Bethesda, MD, 1999.

** Cancer Trends Progress Report - 2009/2010 Update, National Cancer Institute, NIH, DHHS, Bethesda, MD, April 2010, http://progressreport.cancer.gov.

*** Patiño-Fernández AM, Ahna LHP, Alderfer M, Hwang WT, Reilly A, Kazak AE. Acute Stress in Parents of Children Newly Diagnosed With Cancer, National Institute of Health, NIH Pub No. 170251. 2008.
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Dear Congressman or Senator,
Childhood cancer is the leading cause of death among children in the U.S. Each year approximately 15,720 children are diagnosed with pediatric cancer. Twenty percent of children diagnosed die, 83% of survivors suffer life altering impacts.

As stated on its childhood cancer web page (that hasn’t been updated since 2008) the National Cancer Institute (NCI) indicates that pediatric cancer is “relatively rare.” This insensitive perspective is reflected in the fact that NCI dedicates less than 4% of its budget to pediatric cancer research. The bulk of these research dollars go to leukemia research (that has a 85% + survival rate) and little or nothing to other childhood cancers. Pediatric cancers need more research dollars, including the deadliest cancers - DIPG, AT/RT, Neuroblastomas - with these cancers, kids are virtually handed a death sentence on diagnosis, largely due to the lack of research.

As Americans we must demand that our nation invest in pediatric cancer research and give our kids hope. The thousands of kids that die each year, as well as the tens of thousands in treatment, deserve better from this great society.  We request that you consider the needs of our children and pediatric cancer research. We request that Congress -

Appropriate that NCI shift funding to increase funds for pediatric cancer research by a significant amount, and that funding levels continue to increase until there are cures, treatments and protocols available for pediatric cancers. (The current quoted 80% pediatric cancer survival rate is deceiving as 75% of kids suffer life altering impacts, and are at risk for secondary cancers because many are being treated with downsized adult protocols.)

Appropriate that NCI designate a portion of research dollars for the deadliest childhood cancers, realizing that thousands of kids are dying because there has been no research into these cancers.

Provide Bill language to require a Pediatric Oncologist be appointed to the National Cancer board.

Provide language that requires NCI to shift resources to allow for an increase in staffing and awareness regarding the facts and not just the statistics of pediatric cancer, including establishing relationships with pediatric oncology facilities around the country.

In closing I would like to thank you for your consideration of this issue so important to our children. I look forward to your response.

Sincerely,
Your name, Your telephone and / or email address if you choose. For a bigger impact include a photo of your Child and his or her diagnosis.

Find your Congress person:  CLICK HERE     Find your Senator:  CLICK HERE

*author of above letter: Joe Baber
Overview
"Use the form letter below to make an impact upon the people who determine how important childhood cancer should be on NCI’s budget, your Congress Person and your Senators."

4 percent aint squat

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